Monday, December 20, 2021

The Family

 “Dementia is not merely an individual disease. It affects the entire family.” (Dora Leigh)

Sunset is often seen as an occasion to celebrate, reflect on your day, spend time with family, and relax. Sundowning is a symptom of mid-stage to advanced dementia of Alzheimer’s disease. Sundowning is thought to be triggered by fading light. It usually happens during the hours of 4:30pm to 11pm. The symptoms can get worse as the night goes on and usually gets better by morning. Sundowner’s Syndrome causes a variety of negative behaviors like:

·       Aggressiveness

·       Agitation

·       Anxiety

·       Confusion

·       Increased motor activity (like pacing or wandering) 

·       Increased verbal activity (like yelling)

·       Panic

·       Resistance to redirection

·       Restlessness

Sundowner’s Syndrome was first described in the literature of modern medicine in 1941 by a British physician named Ewen Cameron. He called the condition “nocturnal delirium.” Cameron described patients who experienced disorientation, agitation, and panic around bedtime. What differentiates sundowning from delirium is the associated behaviors worsen in the evening.

You won’t find sundowning in the Diagnostic and Statistical Manual of Mental Disorders. It’s not considered a diagnosis. Talk to someone who works with elderly patients. They will be familiar with the concept of sundowning, and its associated behaviors.

For family members who care for their loved one with dementia, watching this evening disorientation can be frightening, painful, and exhausting. This behavior is disruptive to family routines. The person with dementia needs to be carefully watched and protected. Doors need to be securely locked, constant monitoring, and sleepless nights are a few examples of life with a person experiencing Sundowner’s Syndrome.

Simple tips for helping to reduce sundowning symptoms:  

·       Create a predictable routine: Maintain a predictable schedule for waking, meals, activities, and bedtime.

·       Discourage daytime naps: Naps should be kept at a minimum especially if your loved one has trouble sleeping through the night.

·       Encourage daily physical activities: Plan activities that use more energy at the beginning of the day and encourage your loved one to take part in exercise each day.

·       Get medical advice: Certain medications can help your loved one get a good night’s sleep. Just make sure you talk to a doctor first as some medications can actually disrupt sleep and energy patterns, which can make sundowning symptoms worse.

·       Monitor diet: Make sure your loved one is eating a healthy diet, and limiting caffeine and sugar to the morning hours. The biggest meal should be eaten during the middle of the day, and keep snacks light after dinner.

·       Practice light therapy: There is lighting available that provides full spectrum light, which can help minimize some of the sundowning symptoms. Keep rooms well lit and free of shadows, and use night lights to help reduce stress if your loved one needs to get up in the middle of the night.

·       Provide a good sleeping environment: Keep the sleeping area quiet and comfortable. Play soft music and keep the noise level low to help your loved one relax and settle in for the night. 7 to 9 hours of sleep is needed for an older adult.

“Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around.” (Leo F. Buscaglia) [i]



[i] Adapted from:

·       “Sundowning: A Guide to Difficult Behavior at the End of the Day” by mmLearn.org

·       “THE MOST EFFECTIVE SUNDOWNER’S SYNDROME TREATMENT STRATEGY” by AssistedLiving.org

·       “What is Sundowner's Syndrome?” by Coleman Adult Day Services

·       ” Tips to Help Ease Sundowner’s Syndrome” by American Senior Communities






 

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